We have to start somewhere…

So here I am, starting this website and blog. Shauna and I have talked about this for years. Our goal is to provide a place for us to share our journey with loved ones that are struggling with degenerative brain disease. Our new blog will be our diary and information that we have learned to share with you. It is a work in progress. My sister Shauna will add content too and what she has learned and how she can help you now. Our goal is to talk about the past, present, and future and to help you along the way. We hope that you will share this website with anyone that you know that is dealing with this stuff.

The coming holidays are always tough for me.  My father Gary Maier crossed over to heaven on September 22, 2015.  It sounds like a long time ago, but to me, it sometimes feels like last week. I miss my father terribly, but I am spiritually grounded enough to have faith that he is on a different journey now.

My mom resides in a nursing home today and has been there since 2011. It seems like so long ago. I visit my mom more often now than I ever had before, as much as 2 to 3 days a week. I have always made sure to see her at least once a week.  She has gotten a new doctor two years ago and I like this doctor. She has reduced my mother’s medication to what is considered a low dose of anti-seizure medication. It was dangerously high before and causing her to be really out of it. Just zombied out. This is certainly something that I had to learn the hard way. How to communicate with doctors.

The other reason is that with my father now in heaven I have only my mother to take care of. I cherish every moment that I have with her. Of course, I have my own family of Tom, my husband and daughter Anna who is 15 years old.

There is so much to share and my next post will be about the beginning of her diagnosis of Dementia. I hope that you return for a visit and drop a comment for me.

Your friend,
Julie